Who decides what patients need to know?

The following is an excerpt.

The American College of Medical Genetics and Genomics (ACMG) released a report on “incidental findings” in genetic tests on March 21, and kicked up a storm of controversy within the field of medical ethics. Their recommendations are more nuanced than some initial reports suggested, but they deserve wider discussion than they have had so far.

At issue is the question of what to do if genetic testing for one reason shows up data that could be relevant to another condition. The report is titled “ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing Report” [pdf].

View the original article here: Who Decides What Patients Need to Know?

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